In the spirit of Rare Disease Awarenesses, Lisa has chose to speak up about her rare condition!
“Hi, My name is Lisa and I suffer from rosacea. At first, my nose and cheeks became red and hot, and it wouldn’t go away. I thought perhaps I had ruined my skin using a chemical peel, but then I got the pustules. I had acne but these were different, they weren’t concentrated around my pores and wouldn’t respond to ordinary OTC acne creams. They hurt to the touch.
So I did some research and self-diagnosed with Rosacea, which I had never before read or heard anything about. My symptoms were the same and I had the genetic background (Irish) often associated with rosacea. From there I learned that I would need to see a dermatologist. The dermatologist confirmed it right away. She put me at ease with her professional manner but told me to avoid triggers: caffeine, alcohol, sunlight, spicy foods. “Oh great!” I thought. “All the good stuff.”
She prescribed Metrogel, an antibiotic used for treating rosacea. I took it for a while but then life got busy, I stopped seeing her and didn’t get my prescription refilled. My skin was always red anyway and I wore makeup anytime I had to leave the house. I really missed the porcelain skin of my youth. I hate feeling shallow and vain, but when I was doing research for this piece, I found that I was just human. I read the National Rosacea Society’s webpage and the surveys they have done showing that the disease can significantly affect patients’ self-esteem, social and even professional life.
I started treatment again recently after reading that rosacea can affect the eyes went back to the dermatologist after doing some more research. This time I asked for and was given both a cream and a pill that I can take once a day. There’s no cure for rosacea but I’m doing what I can to control the symptoms and contain it.”